Happy New Year Everyone!
I'm excited to tell
you about a new way we can help Dr. Herbst and ourselves!
Dr. Herbst has a project
in mind that could begin soon. How many of you have read her article
"Adiposis Dolorosa Is More Than Painful Fat"? That article helped us
learn what symptoms are common with Dercum's Disease. Great information! But it
was based on a survey done more than 5 years ago. Wouldn't it be great to not
only get an update but to actually be a survey participant?
Dr. Herbst estimates
that it will take $1500 to pay assistants to do mailings, enter and validate
the data and do some preliminary analysis.
We can help by
donating toward that effort! Cure Dercum's is organizing this and will keep
track of all donations and donors. The money raised (minus paypal fees) will go
directly to Dr. Herbst's research fund at the University of San Diego and will
be earmarked for this project. Any extra money received will be saved for the
next project. Periodic updates will be posted on the Cure Dercum's site. Once
the money has been raised, an invitation to partcipate in the survey will be
posted on our site and on facebook. If
you were in the original survey, Dr. Herbst will attempt to contact you
directly. If you were in the original survey and your contact information has
changed, please contact her directly at kaherbst@gmail.com.
Donations can be made through the link on our site. If you
are not able to use paypal but would still like to donate, contact me at damuffett@aol.com and I will give you some
options.
Let's make this
happen!
Diane
