Thursday, February 28, 2013

Handprints on the Hill

Today is Rare Disease Day!
Today we recognize the millions of people in the United States and globally who are living with rare diseases. We show that we are united across the globe, across diseases, and across experiences. Together, our voices are united in support for each other and for the entire rare disease community.
NORD has received a letter from President Obama about Rare Disease Day, which begins as follows:
"I send greetings to all those observing Rare Disease Day.
Submit a Letter to Your Representatives
Click on the image above or follow this link to submit a letter through the Handprints on the Hill campaign. It takes just a few minutes to electronically send a message to your Representatives that rare diseases are important to you! Join your voice to the rare disease community to show that you vote and you care about rare diseases. Then encourage your friends and family to submit a letter! This is a 24-hour campaign specifically for Rare Disease Day.
Send Us Your Handprints

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