A friend pointed out to me that FDRS has some very helpful information on their Dercum's Disease page. Okay, I know - I so should have seen that sooner.....
It is a concise explanation of Dercum's with symptoms and treatments - a great resource to print off and give to your doctors or friends and family to help them understand. It's at
http://fatdisorders.org/what-are-fat-disorders/dercum%e2%80%99s-disease-adiposis-dolorosa/
A lot of it is on this site in one form or another. But they have put it all together in a nice format for you to use and I thank them for doing that!